Crohn's Disease Research

Goals

To understand how many people suffer from Crohn's disease in the following countries: the United States, Germany, France, Denmark, the United Kingdom, Sweden, Norway, Finland, and Spain. Additionally, for each country, to understand the demographic breakdown of sufferers of Crohn's Disease. Demographics can be One: Age, Two: gender, and Three: race (if available).

Early Findings

The United States

Germany

France

Denmark

  • The annual incidence of Crohn’s disease increased by about 75%, from 5.2 to 9.1 per 100,000 individuals between 1980 and 2010.
  • The increase in annual incidence rates of Crohn’s disease was highest among patients aged younger than 15 years, while the increase in annual incidence rates of ulcerative colitis was highest among patients aged older than 15 years.
  • Increases in Crohn’s disease incidence were seen among both sexes, but the incident rates were significantly higher in females.

United Kingdom

Sweden

Norway

Finland

Spain

Summary Of Our Early Findings Relevant To The Goals

  • Our initial hour of research was spent trying to understand if the data asked for is publicly available. It was a mixed bag. While some countries like the United States, Canada (which was not asked for) and the United Kingdom appear to have readily available data, other countries did not have recent statistics. In fact Norway does not appear to have any recent data, but again we were only given one hour to research, so more digging is recommended in this case.
  • It should be noted that Crohn's Disease very often is lumped in with ulcerative colitis, as well as IBD in general, and data has been provided on that when Crohn's disease statistics were not available.
  • Both prevalence and incidence appear to be readily available for IBD, however, there was no data found that provided how long the average person has been dealing with the disease. In other words the number of years since diagnosis. We will not be pursuing that avenue. However, we did note that there was data surrounding how old someone was when they are first diagnosed.
  • We will use the most up to date publicly available sources available, but we noted that for some countries, the most recent data was a decade or more older.
  • We did not have time in the initial hour to drill down on demographics, but we did note that in almost all cases, we saw that age and gender were publicly available for most countries, but that could be for IBD in general, and not just for Crohn's disease.
  • Please select one or more of the options provided in the proposed scoping section below.

Proposed next steps:

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