Wonder

Role of COPD-E Caregivers

Delivered October 9, 2019. Contributor: Estel M.

Goals

To provide 1-2 statements from COPD- E caregivers taken from forums about their roles. Research will be used to guide the development of an audience profile. 

Early Findings

STATEMENT 1 Debik stated in the "A Day In The Life of A Caregiver" posted in COPD Foundation that her roles in the family and as a caregiver were interchangeable.
She said, "Once we all arrived at our destination my role as Mom, Grandmother, Wife and caregiver became interchangeable.I am very fortunate that my husband and I discuss the effects of his COPD on him, good and bad. Those conversations allowed me to be all those every day."
STATEMENT 2 Joey Joe  is a caregiver along with his mother for his father with COPD. He feels he needs to take a more active role especially as some drugs prescribed for his father may actually be exacerbating his dad's condition.
In a post titled COPD and Depression, he said, "As the son, I've relied on my mother to do primary care as she takes care of him. I worry though that she is not given the best advice and that bad habits creep in during the day to day life of my dad. So, I feel like I need to step in and take a more active role."
"MY point is, what kind of doctor would prescribe this in the first place? Why wouldn't a primary care doctor realize that weight loss and lack of motivation be a sign of depression and work on that instead of letting him fade away? Should I be concerned that my parents are getting bad advice?"
He also replied in the forum that "I feel like I am going to have to take a bigger role because basic research is teaching me a lot and it feels like my parents, even though they're motivated, are not well informed."

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